Monday, July 20, 2015

July 20, 2015 - Swallowing & Birth23

Adelynn got approved for Birth to 3 services for developmental delay. What qualified her was that she was unable to sit up from the floor. She isn't behind on any of the gross motor, but we felt that we should just go ahead and do it because she does have low muscle tone too. We have been getting services for a few weeks now (once a week) and have definitely seen improvement! It's so nice that they come to our house which makes Adelynn much more comfortable. They show us a new trick to work on and after showing her, she has got it! She is so smart and picks up on everything.

She likes to lock her knees and curl her toes in, which helps her stabilize (it's harder for her because of the low tone), so we have been working on bending her knees in the standing position. The therapist is so shocked at how much she has improved - she says it typically takes weeks for a baby with low tone to learn these new tricks. I think it's Adelynn's determination because she is into everything!

Now that she has the hang of it, she can pull herself up and get down from anywhere!


We still have to thicken Adelynn's liquids. She is down to one bottle a day (at bedtime), but it is a struggle trying to find liquids in the store that are "nectar" thick. We have found some juices, but the doctor recommends to limit the juice intake. For right now we are thickening the milk with Gelmix (half whole milk, half formula - trying to get rid of the formula) and also thickening some water (which she doesn't really like). The OT (feeding specialist) recommended to try to slowly thin the liquid, which we have tried, and she still coughs. I'm leaning more toward doing the scoping...we need to think about it some more. She would need to be under anesthesia for it, which makes us nervous.

Yes, she has more outfits than these pj's! Haha! For some reason I always snap photos of her in them.










Some random pictures











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